Tuesday, December 10, 2013

Do you think hospitals should deny children transplants because their disabled?


No matter what an issue is, it is the hospital right to protect the rights of their patients and make sure all is taken care of. They are not there to judge, cast judgment, exile or make others feel out of place. Nor are they their to turn children away based on assumption. Everyone should be welcomed and given a fair chance no matter what the circumstances are in life.  If you agree this statement s, you might agree with the facts I am going to present.

A New York women who son was seriously ill was denied a heart transplant by New York – Presbyterian Hospital because he is mentally disabled. Yes that is correct, the child was denied the surgery he desperately needed because he was born with rate genetic defect. The little boy was bored with Coffin-Sires syndrome. The syndrome is said to cause children to grow up with intellectual and development disabilities, which weakens the immune system. It is because this reason they chose not to operate on the infant. Going with this information, I would probably agree with the hospital but the parents did not agree.

The hospital put the little boy on the list for the surgery and then took him off because of his disability. The parents did not agree with this decision; especially when she was told spend time with him before he dies. As any parent would feel she felt like they just gave up on her and her child who has been fighting since he was born. Why put him on the list in the first place if you knew his condition, what made them all of a sudden want to change their mind about him on the list because they know for sure it wasn’t the disability. The parents refused to give up and sough consultation in Boston.

When another doctor by the name of Dr. Gijs Santen, from Leiden University Medical Center in the Netherlands, stepped up he stated that children with Coffin-Siris do not have compromised immune systems. And he quoted “It is difficult to use infection risk as a reason not to perform a heart transplant. Well anyone would say that well things happen but when another doctor, Dr. Grange Coffin confirmed what Dr.Santen previously stated the family knew that NY Presbyterian hospital were wrong for denying the child. With all this information the hospital refuse to look into the child’s case again and did not change their mind. 

Luckily, another hospital approved the transplant. On May 18, the child was taken by ambulance to the hospital where he was prepared for surgery. But do to the changes in his medication he status changed and he no longer needed the surgery. Which was blessing to the family, without the hospitals help.

Do you think hospitals should deny children transplants because their disabled?

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